Research + Experience

Bec Hanley and Derek Stewart

Training for patient and public involvement in research

Email: us@becandderek.co.uk

Bec Hanley: 0796 708 6078
Derek Stewart: 07590 983876

Resources

We have found the following websites useful.

About research, science and public engagement

Behind the Headlines 
This is a site that explains and helps you understand many of the health stories that hit the headlines in the media.

Guardian Healthcare Network 
This new partnership between the paper and the National Institute for Health Research provides a forum for discussion along with information.

National Coordinating Centre for Public Engagement
This helps universities to engage with the public. The website has lots of useful information and advice on public engagement.

National Institute for Health Research (NIHR)
NIHR has created a health research system in which the NHS supports outstanding people in world class facilities.

sense about science
A charitable trust that equips people to make sense of science and evidence on issues that matter to society. 

TESTING TREATMENTS 
This urges everyone to get involved in improving current research and future treatment.

About getting actively involved

INVOLVE 
Provide information about public involvement in research with various guidance documents and advice.

Involving London 
This website enables both patients and the public to find out how they can get involved in health and social care research in London and for them to find out more about current opportunities and to share information and experiences.

Involving People 
This organisation in Wales believes that 'active' involvement of members of the public leads to research that is more relevant, more reliable and more likely to be used to improve health and social care services.

Involving People in Research 
This Australian website has been developed to house resources such as the new Fact Sheet Series

James Lind Alliance 
The JLA help with ‘research priority setting’ especially involving people affected by a condition or illness. See Priority Setting Guidebook

North West People in Research Forum 
This organisation is devoted to supporting PPI and public engagement (PE) in health research in the North West.

People in Research 
Joint initiative helping people to become actively involved in research, providing information about opportunities.

TwoCan Associates 
Helps voluntary and statutory organisations to involve service users, patients, carers and the public in their work. Produces papers and information of user involvement in research, including a route map (developed in conjunction with the Association of Medical Research Charities)

UK Clinical Ethics Network 
The main purpose of this website is to provide information for UK clinical ethics committees

User Involvement Shared Learning Group 
The User Involvement in Voluntary Organisations Shared Learning Group aims to encourage shared learning about service user and/or carer involvement between national voluntary sector organisations working within the UK. Everyone is welcome to use their website to access useful resources about user involvement.

Workshop in a Box 
This is a wonderful new site from the Central Commissioning Facility - well worth a look